Evan is doing well. It takes a lot to get into a rhythm after a hospital admission but we are there. Evan has been doing well since being home. We had the limits on his home monitor changed so that we don’t have the beep beeps as often. The first night was rough but after we got the setting changed I am able to get a couple hours of sleep..thank God!
He is still very busy. The other morning I woke up and he had pulled his NG tube out overnight. He is still very entertained by his feet. He LOVES throwing his feet up in the air and playing with them. He is now saying ‘dada’ and we are teaching him to say ‘baba’ for his brother! We are looking forward to a nice relaxing weekend and hoping to get outdoors to enjoy some of this beautiful weather.